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Fuel for the Journey

By Lin Mouat

 

Resources for Comfort and Information 

 

The first weeks following release from the hospital after a stroke, brings a dizzying rush of therapies, doctors, and adjusting to being out of the hospital. For me, there was little time to process the magnitude of what had happened.

 

In August, I will be four years post strokes and am still learning and healing. Following are a number of resources I’ve found very useful in my journey.

 

The Internet holds keys to a kingdom of knowledge about strokes. Whether you are researching books or websites, the Internet is a good place to turn. If you aren’t able to use the computer and/or the Internet, ask a family member or friend to explore and give you reports on what they find.

 

 

WEBSITES

 

NIH Health

http://nihseniorhealth.gov/stroke/toc.html

(NIH is the US National Institute of Health)

 

This site is excellent and user-friendly. NIH, a government website, is filled with information on all things stroke. I especially like the recent research section; it includes a brief synopsis of the newest discoveries.

 

The American Stroke Foundation

http://www.americanstroke.org/content/view/81/107/

 

The American Stroke Foundation website has a unique feature that makes it invaluable for survivors with sight problems. The information on post-stroke therapy is presented via a computer video. Another good area of the site is “Survivor” – it is a Bill of Rights for survivors, written by Dr. Jill Bolte Taylor, a doctor who had a stroke in 1996. Doctor Taylor is active in stroke education and speaks about ways to help recover.

 

It isn’t possible to talk about all of the information on the American Stroke Foundation site, so, please, go online and explore all of the nooks and crannies.

 

Stroke Survivor

http://strokesurvivor.com/stroke_survivors.html

Stroke Survivor is the website of Paul Berger, the survivor of a massive stroke at the age of 36.Berger shares learnings and links to various resources.

 

Here is a link to info about his book “How to Conquer the World with One Hand and an Attitude." Check out his book.

 

Revolution Health

http://www.revolutionhealth.com/conditions/brain-
nerves/stroke/rehabilitation/rehabilitation?

section=section

 

This website provides a simple overview of the route most recovery programs take, and what you can expect from them.

 

The American Stroke Association

www.strokeassociation.org

 

This website is filled with information including the initial stages of recovery, life after stroke and information for caregivers.

 

Right Health

http://www.righthealth.com/Health/stroke-s

 

Right Health website does a good job of combining visuals with written information. It is easy to navigate and it contains a wide range of helpful subjects dealing with stroke from symptoms to range-of-motion exercises.

 

The National Stroke Association

www.stroke.org.site

The US National Stroke Association has a multitude of helpful resources. These resources encompass the breadth of stroke information – from warning signs to recovery – with resources to guide you through the maze of books, internet sites, and many other things.

 

The Stroke Network Information Resources

http://www.strokenet.info/

 

Among the sites owed by our organization is Information Resources. Here are various links to more info on stroke.

 

 

MESSAGE BOARDS

 

There is another great resource on the Web – Message Boards. One of the best is on StrokeNet Message Board http://www.strokeboard.net

 

You can read the boards without registering, but you can not comment. The StrokeNet boards are carefully monitored so you can feel safe in sharing.

 

 

READING

 

The third resource is reading. Many hospitals, like mine, have a library that includes books on stroke.

 

Before spending money to purchase a book, check to find out if your hospital has a library. Such libraries are a good resource. Your public library also is a great resource for books. Make sure you ask a librarian. There may be an inter-library loan and/or a program to purchase books which are asked about.

 

To see past book reviews and website reviews in this publication see Classic Articles at http://www.strokenetwork.org/newsletter/index/index.htm.  Book reviews each contain a link at the end which links to Amazon. There you will find additional info about the book.

 

A book I highly recommend is “After a Stroke, 300 Tips for Making Life Easier,” by Cleo Hutton.

 

Cleo writes in the preface, “It is extremely important to have your neurologist explain to you and your family the exact brain areas, and their functions, affected by your particular stroke.” Her statement is the starting point of your journey toward recovering.

 

In this book, the author covers a wide range of practical helpful information. She writes in a simple, direct way and in a way that allows the reader to skip around, choosing the things that are important at the moment.

 

The sections of The 300 Tips include:

 

The Basics

 

Dealing with the initial deficits

Getting Ready

 

Taking care of your personal needs

The Greatest Strength Comes from Within

 

Self-esteem, financial and humor helps

Let’s Get Cooking

 

How-to’s of cooking post-stroke

Let's Mention Unmentionables

 

Urinary Incontinence

Let's Get Moving

Tips for everyday living - the phone, mobility, travel

 

Brain Builders

Building new connections in the brain, practical helps with pain, exercise, and things to build brain power.

 

The Importance of Love

Improving Intimacy

 

Two additional sections share tips for families and a listing of resources.

 

Read the Stroke Network Review of the book. This review includes a link to to Amazon where you will find other reviews and additional information.

 

BTW, Cleo Hutton is a member of The Stroke Network.

 

This book is both a reference and a road map along the journey to wholeness.

 

 


Email comments or suggestions to. lmouat@strokenet.biz.


Copyright © July 2008

The Stroke Network, Inc.

P.O. Box 492 Abingdon, Maryland 21009

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